has anyone used a saunders cervical traction device?
(or, something similar) what was your experience?
View ArticleIs here anybody who can interpret Upright-MRI results of the craniocervical...
I have my Upright-MRI pictures back from 2009 here, but I don't know how to interpret them as a layman. The radiologist said there was no instability but I have doubts when I look at the pictures (not...
View ArticlePain at ends of ribs after mild mechanical stress
Firstly I'm not officially diagnosed with EDS, definitly not hypermobile but do have fairly stretchy and noticeably smooth skin, (everyone who has touched me says this without fail). I don't have...
View ArticleCCI Symptoms vs POTS
Hi all! I am going to get an upright mri to look for CCI... I was diagnosed with ME/CFS 5 years ago. Also have been diagnosed with EDS and hyperadrenergic POTS. I’m curious if CCI symptoms develop over...
View ArticleScoliosis
Does anyone have Scoliosis? I believe it's contributing to this illness. Im also closely looking into neck instability as I have many symptoms of it.
View Articlepectus excavatum
My son had a complete physical recently and was told he has a concave chest (pectus excavatum). http://en.wikipedia.org/wiki/Pectus_excavatum. I never knew this was a problem or a medical condition....
View ArticleFor those with CCI can you describe disease state/symptoms/progression?
I’m thinking I’ll need to rule out CCI at some point but, for those who have experienced it, did any of you guys have periods of remission or was the disease state constant? I’ve had brief periods of...
View ArticleHas anyone got a Digital Motion X-ray (DMX) to look for Neck Instability?
Has anyone got a DMX to look for CCI, AAI, or any other instability of the neck? We're you diagnosed with it or had to get other scans like an upright MRI to find it? I'm scheduled to get one soon....
View ArticleTests for connective tissue disorders?
I’m unfamiliar with this type of testing but is there a way to determine if you have a connective tissue disorder? Is it possible to have one that developed secondarily and is not hereditary?
View ArticleDoes recovery after CCI/AAI surgery exclude an ME/CFS diagnosis?
THIS THREAD WAS STARTED FROM OFF-TOPIC POSTS WHICH WERE MOVED FROM THIS THREAD: https://forums.phoenixrising.me/threads/my-me-is-in-remission.76324/ At the risk of annoying many people here, does it...
View ArticleElastase 2 Inhibitors
Hi, I hope this message finds you well. I have saw this presentation it seems a good hypothesis who emphasizes on the pragmatic part: Anyone tried Elastase 2 inhibitors Indole-3-Carbinol ? Horse...
View ArticleCCI SURVEY – for all ME/CFS patients tested for CCI and related conditions...
Craniocervical Instability, Chiari and Spinal Stenosis Survey For ME/CFS patients diagnosed positive or negative for CCI and related conditions This survey is for ME/CFS patients who sent their MRI or...
View ArticleQuestion about EDS
Does anyone know if EDS can occur at any age? Before becoming ill this year, I lived an active life doing things like mountain biking, hiking and jogging. I never experienced dislocations which I hear...
View ArticleWhat’s the theory behind the connection EDS and ME/CFS? (Other than CCI/AAI)
I now suspect I had EDS all my life without knowing. I will get tested for it in a couple of weeks. I will also get an MRI of my brain and neck. I got sick from covid in april and I’m trying to...
View ArticleDon't know where to start - feeling confused
Hi guys, I have been sick for 7 years and still don't feel like I have answers. Then, in July I randomly started feeling like I was on a rocking boat 24/7, and it hasn't gone away since. It is so bad I...
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Insurance Inquiry
Good Afternoon, does anyone know any insurance companies that offer out-of-network benefits? I'm trying to find out regarding the invasive tests by Dr B in NY? Thanks! Blessings
View ArticleCCI and cervical collars, etc.
I am having a hard time with cervical collars. I first got an Aspen but it just didn't fit me, so I got a different back panel, still didn't fit. My PTs all thought it was just too big for me. So I got...
View ArticleExtremely Soft / Weak Neck Muscles?
It seems to me that many people who have problems with their neck complain about stiff neck/ muscle tightness. However it's the opposite with me. My neck has become unusually soft that can't be...
View ArticleAnybody get an electrocution feeling on their neck?
So, the last couple days ive been laying on the floor for anwhile. It has felt good. Stretching out my neck. Could also be my addiction of bpc 157... But! Ive got this feeling like my neck, prob one of...
View Articlehas anyone used a saunders cervical traction device?
(or, something similar) what was your experience?
View Article