Functionally, what's the difference between knowing and not knowing?
Assume you don't have one of the major types that can lead to really bad symptoms and shortened lifespan. I could see how knowing that would be useful.
But let's say you're Hypermobile type and you have symptoms. It seems like a diagnosis will only stop you from seeking out other causes and wasting your time.
This could be a good thing, or a bad thing if the complacency given by a diagnosis leads to you missing other...
Does an EDS diagnosis actually help at all?
Assume you don't have one of the major types that can lead to really bad symptoms and shortened lifespan. I could see how knowing that would be useful.
But let's say you're Hypermobile type and you have symptoms. It seems like a diagnosis will only stop you from seeking out other causes and wasting your time.
This could be a good thing, or a bad thing if the complacency given by a diagnosis leads to you missing other...
Does an EDS diagnosis actually help at all?